I wasn't sure if I should post this update here, but I suppose it's as good a place as any. Mr. E was diagnosed with cancer last Wednesday following two years of unexplained knee pain. It's pretty bad. The tumor, a biphasic sarnovial sarcoma, is the size of an ostrich egg. It's actually located in his calf, but it's pressing on the nerve, which is causing pain in the knee and more recently, foot numbness that extends from heel to pinky toe.
The treatment for biphasic sarnovial sarcoma includes chemo and either amputation or limb salvage surgery. If he goes with the latter, he will also need pre-op radiation. We are coming to terms with the fact that he may lose his leg, or at best, retain one with compromised function. What scares the bejesus out of me is that the leg isn't the problem; the main concern is metastasis, something that this type of tumor is prone to do.
So far, scans have shown that his lungs/spine/liver/etc. are clear. Thank God. In the best case scenario, the tumor is self-contained in the leg, the doctors remove it completely, and it never has the chance to spread. In the second best case scenario, the tumor has spread (albeit on a microscopic level), the doctors remove it, and post-op chemo kills off any baby tumor cells. In the worst case scenario, the doctors remove the tumor, but it has spread microscopically (usually to the lungs), and chemo can't get rid of it. If this happens, it will be extremely difficult to cure him.
At this point, doctors think it's possible that the tumor has spread. Its size is a poor prognostic factor, as well as the fact that it's been in there for so long. At worst, we have been quoted a 25% survival rate over the next 5 years. At best, we have heard 50-60% with the right treatment. We are praying that he is one of the lucky survivors, and I fully believe that if survival were achieved solely through faith, optimism and determination, Mr. E would win this fight. I am praying for luck though, too.
I cannot imagine a world without him. He is my best friend, the father of my children, and the one I want to be with for the rest of my life. I am terrified, blindsided, heartbroken. I am hopeful though, too. Scared, but hopeful.
Anyway. I will try to keep up with as many blogs as possible as we travel down this unexpected fork in our road. I wish you all love and health.
XO, Mrs. E